My Daughter Jamie Lost Her Legs and Fingers in a Ferocious Battle Towards Meningitis

My Daughter Jamie Lost Her Legs and Fingers in a Ferocious Battle Towards Meningitis

As informed to Erica Rimlinger


My daughter Jamie was in her second 12 months on the University of Texas at Austin, residing in an off-campus condo, when meningitis hit like a hurricane with no warning.

I used to be out of city when she immediately felt like she was coming down with the flu and her signs had been getting worse shortly. Jamie’s older sister — a senior at UT-Austin — occurred to name to ask for a experience to high school when Jamie informed her she thought she wanted to go to the hospital. The ladies referred to as me, and I stated, “Call ahead, take your insurance card and let me know how it goes.” I used to be involved however not panicked. Their subsequent name modified that. “Come right now,” my daughter informed me. “The doctors are saying, ‘Get your mom here immediately.’”

Jamie’s physique was breaking out in deep-purple rashes. Medical personnel acknowledged this as an indication of meningococcal septicemia, which is brought on when the micro organism that trigger meningitis infect the bloodstream. Meningococcal septicemia poisons the blood, and in Jamie’s case, it lower off circulation to her fingers and toes.

I reached the hospital in hours and was shocked to search out Jamie dazed and plugged into medical tools within the intensive care unit, her coronary heart racing at 120 beats per minute.

Since meningitis can kill inside hours, there was no time to attend. As quickly as meningitis was suspected, medical doctors began treating her with antibiotics. In addition to a mortality price of 10% to fifteen%, meningitis may cause lifelong, extreme disabilities in 20% of those that survive it. My life funneled all the way down to a singular focus: serving to my daughter survive.

When her analysis was confirmed, I questioned how this had occurred. I assumed Jamie had had all her vaccinations, nevertheless it seems the one for meningitis advisable at age 11 is meant to be adopted by a booster at age 16, however her pediatrician had deemed it “unnecessary.”

But, even when she’d had that booster, it might not have protected towards one type of meningococcal illness: the B pressure. College college students are significantly vulnerable to meningitis B as a result of they dwell in shut quarters, and the illness can unfold simply by saliva and shut contact. According to the National Meningitis Association, meningitis B has been answerable for 100% of meningitis outbreaks on faculty campuses.

The Centers for Disease Control and Prevention recommends meningitis B vaccination for teenagers and younger adults between the ages of 16 and 23. But since this vaccine wasn’t obtainable till 2014, most youngsters haven’t but obtained it. As a end result, tens of millions of youngsters and younger adults aren’t vaccinated towards this lethal, preventable illness. They’re solely partially protected.

Jamie’s limbs turned from purple to black. One buddy who came over thought she was sporting black socks. For weeks, I by no means left her aspect. Because meningitis is well transmissible, we needed to put on robes and masks once we had been in Jamie’s room.

She was ultimately flown from Austin to a facility in Houston, the place medical doctors would attempt to save her limbs. She obtained oxygen remedy on daily basis for 60 days. The remedies did save components of her limbs, however in the end her legs needed to be amputated under the knee and she or he misplaced her fingers on each fingers.

Jamie and I spent seven months within the hospital in Houston. By the time Jamie was launched, she weighed 80 kilos. Though she seemed like a newly hatched fowl and will barely elevate her arms, she was smiling. She nonetheless celebrates the day she was launched, calling it her “new life day.” Her superb spirit and positivity carried her although. “I’m ready to move forward,” she informed me. “I want to move on with my life.”

As a household unit, we pulled collectively and offered love — typically even robust love — for Jamie. I informed her, “You’re going back to school,” and her faculty accommodated her with on-line courses.

When she graduated together with her diploma in health and human providers, the college president spoke about her in his speech. Jamie is married now. She drives, she works, she advocates, and she or he turned the one bilateral amputee to compete in long-distance biking within the 2012 London Paralympics. I’m hoping she and her husband will give me some grandbabies quickly, however Jamie says they’re having an excessive amount of enjoyable.

There are nonetheless struggles, in fact. Prosthetics aren’t all the time simple to suit or pain-free. Jamie will want extra surgical procedure quickly as a result of her leg bone is rising, and it’s inflicting her a number of ache.

But this vacation season, I look again on the Hanukkah we spent within the hospital in Houston to the one we’re celebrating this 12 months with our rising household, and I’m so grateful for all of the members of the family in our sturdy and loving help workforce — and for Jamie’s miraculous restoration.

No little one, no mom, no household ought to need to expertise what Jamie endured. In 2008, we had no protection as meningitis ravaged my daughter and took her limbs — however right this moment, individuals do. I would like all dad and mom to know they may also help stop this brutal, typically deadly illness. There are protected and efficient vaccinations available to assist shield towards 5 teams of meningitis — one for meningitis A,C,W,Y and a separate one for meningitis B. I encourage all dad and mom to get their youngsters vaccinated. If it’s your little one who will get the illness, does it matter if it’s uncommon?

his useful resource was created with help from GSK.

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